Thursday, May 7, 2015
We officially got our diagnosis a few weeks ago and today, through testing we got the label of "moderate autism".
The diagnosis a few weeks ago sent me into severe sadness even though I knew it was coming. Then right after that Bunny got really sick and it was a very intense and stressful week of me having no idea where he hurt or what was wrong except that I knew his skin looked like it was exploding. Today, I heard the word moderate and honestly I thought "At least he's healthy".
I don't care what he is diagnosed with as long as he is my sweet bright eyed boy. Last week was miserable. It's all about perspective.
Of course I have concerns for his future and what having autism simultaneously with down syndrome means for him but I can't allow myself to worry about that. In this day, in this week, he is back to his happy almost healthy self and for that I am grateful.
This doesn't mean I won't be proactive and a research nut. But we all know I do that already. My first goal is to get his immune system stronger. We have been working on that but we are clearly not there yet. I have doing the Gemiini program with him for speech and Daddy and I have both noticed a big difference! As soon as our report comes in we will also be going after ABA therapy.
It's a lot. It makes my heart sad. But he makes me happy.
Sunday, May 3, 2015
This was a challenging hike for Boogie. Knibbs Knob at Uvas canyon is not a long hike but it's steep. You climb 1700 feet in two miles. I did a lot of encouraging. My motto is always that you have to climb to see the best stuff. Boogie was not liking my motto.
This would be a miserable hike on a hot day. When we went it was in the 70's and it was plenty hot. There is no shade at all once you are near the top.
The views are fantastic though. I keep exclaiming "LOOK!" as we were hiking but Boogie was pretty focused on the tough factor.
The smile was back once we were near the top. I know she was proud of herself for toughing it out.
At the very top there isn't much of a view but there is a bench and shade. We snacked and rested and then she was her old self again.
I was so proud of her. I think endurance is a good lesson to learn young. I'm still learning it. The grind sucks but then you're at the top and your like "Hey! I did that!"