Friday, March 21, 2014

World Down Syndrome Day 2014

This is one of the many things I posted on Facebook today in honor of World Down Syndrome Day:

Quote of the day: "I didn't know I wanted a child with Down syndrome until I had one"

You guys know I am not a rose colored glasses, glass is half full, unicorns and rainbows kind of girl. I tell it like it is. I think people sometimes think parents of children with Down syndrome have "drank the kool-aid" and are living in denial (I did). Have things been challenging? Absolutely. But easy is overrated. You know what isn't? Love and joy. And my son with Down syndrome brings us both everyday. I have a perspective on life that I would never have had the chance to experience without the birth of my son.

Happy World Down Syndrome Day!


It was emotional for me to write because I feel like even posting that people won't believe that truly...everything is okay. I don't know if it is okay to say this out loud so I didn't post it on Facebook but really truly I feel like Bunny is my reward.  On the hard days when my other children are challenging me and sassing me and pushing every boundary he looks at me with his bright blue eyes and butt scoots over to give me a kiss.  

His hard days are probably coming.  I realize this.  But for this moment...at this time in life...he is my sunshine and my reward.



My girls wanted to do something to celebrate today.  I didn't think the school would allow them to wear silly socks because they wear uniforms so we went with blue and yellow accessories.  On the way to school I asked them what they thought having Down syndrome meant.

Baby:  It means you are really cute
Boogie:  It means you have a 3rd copy on your 21st chromosome and it means it might take you longer to do things.

I leave you with this video which made me cry.  I am trying to figure out why it made me cry.  They were definitely happy tears but I'm not sure what triggered them.  




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